Monday, April 4, 2011

Embracing Your Inner Cruella De Vil

Three years of guilt, frustration and heartbreak. Three years of hating myself for being the bad guy and making her move. Three years of sorrow for loss, for what comes next, for a life grown small.

When I made the decision (with support from my wonderful sisters) to move my mother from her house to a senior living facility closer to me, she was so upset she got shingles, which are nasty and often result from stress. (And, by the way, if you are sending a picture of your mother’s butt to your mother’s doctor so the doc can get a jump on the diagnosis, remember to erase that picture so that the next time you whip out your cell phone to show a new acquaintance pictures of your cat—taken before the butt photos—you don’t accidentally moon your new acquaintance with your mother’s butt.)

After the shingles went away, I found her lying on the floor one day. Urinary tract infection but maybe a small stroke. Then came the broken hip—you know, the one where she told me her knee was bothering her and I drove her to the ER, where they gently suggested an ambulance might have been a better choice. And then surgery to replace that hip, after which she thought I was my father and announced to me, “They tell me you’ve been dead for 19 years.” I resolved to do something about that little facial hair issue and the apparent pallor issue.

Then rehab and then coming home and all the confusion and finding full time help and then the inevitable worsening of her condition—forgetting where she was or big parts of her life story or not knowing where I was born or when, which made it much easier to lie about my age and feel good about it because if your mom doesn’t know, who does?

And always, the guilt. The guilt about ruining the end of her life. My mom gave me a sweater once that had the initials DOM over the left breast—Daughter of the Millennium. It was a gentle joke—I often referred to myself that way, just to tease my sisters—but in some small way, I believed it. But once the new century began, there was no more talk of this, and I knew I was seriously out of the running for any kind of honor, except perhaps the Cruella De Vil "Rhymes With Witch" Award.

Until one recent Sunday when my mom asked me again to explain to her why she was living where she was living. And I told her the story and I said, “You were very angry with me.” And she smiled and said, “Oh, honey, I had no business living by myself anymore. You did the right thing.” Absolution. Finally. From her.

And someday, maybe I’ll even forgive myself for doing what needed to be done. There’s a leadership lesson in there somewhere, but I don’t want to think about it too much because I bet Barack Obama doesn’t cry when he ponders his tough and unpopular decisions.

****
It is opening day of baseball season. My mother loves baseball, loves the athleticism of it, loves the Dodgers. I’m disgusted with the Dodgers because of the Divorce and how they phoned it in last season, but I agree with her about the grace of the game. She asks me repeatedly during the off-season: How many more days till opening day?

Finally the day is here, and I stop by her place with a new Dodgers jersey and she is delighted. I write down the time of the game and the channel and give it to the caretaker and tell Mom to root for the Dodgers in their home opener against the Giants. She is beaming as I leave and says, “You are the best kid.” I am beaming too.

At 90, my mother has taught me another important lesson: Life, examined as a selected series of moments, can be joyful. I asked her later whether she watched the game, and she didn’t remember. But it didn’t matter—finally—to either of us.

Wednesday, December 22, 2010

Ten Steps to a Hotter Marriage

1. Nag your spouse about taking blood pressure
2. Refuse to speak to your spouse when he says he will not do it
3. After 36 hours of silence, congratulate yourself when he capitulates and says he will do it.
4. Do a little victory dance when he says he wants to go buy the BP cuff
5. Get the BP cuff home, try it out, actually take his BP
6. When he asks where it should be stored, suggest in the oven with the salad bowls.
7. Bask in his praise when he says that’s a great idea
8. Get up early Monday and make porkchops, which require broiling
9. Fail to remove salad bowls and BP machine from top part of oven
10. Remove smoking, melting BP machine from oven after your realize you have melted it. Serve with a nice Bearnaise sauce.

Thursday, December 16, 2010

Help Me Sweet Jesus, Especially if You're a Cardiologist

Date: Dec. 9
Ring!
Receptionist: World's Lamest Medical Center. How can we not help you?
Me: I need to get an appointment with Dr. Cardiologist. My husband is short of breath, apparently is retaining fluid and is exhibiting classic symptoms of congestive heart failure.
Receptionist: What are his symptoms? Please repeat them so I can ignore you again.
Me: Rapid weight gain. Shortness of breath. Extreme edema.
Receptionist: How far is the patient able to walk without assistance?
Me: He can't walk.
Receptionist: So would that be 10 feet?
Me: He can't walk.
Receptionist: Less than 10 feet?
Me: Can't walk means zero feet. No feet can he walk.
Receptionist: So he is having trouble walking?
Me: Um, yes
Receptionist: Is he having trouble breathing?
Me: His breathing is labored.
Receptionist: But is he having trouble breathing?
Me: Yes, his breathing is labored.
Receptionist: So he's having trouble breathing?
Me: Yes.
Receptionist: After he walks?
Me: He can't walk so no.
Receptionist: So he is not having trouble breathing?
Me: Yes, he is but not after walking.
Receptionist: So he is not having trouble breathing after walking?
Me: No because he can't walk.
Receptionist: So he's breathing fine?
Me: No, he's having trouble breathing while he's stitting still.
Receptionist: But is he short of breath after he walks?
Me: Yes.
Receptionist: How far?
Me: Less than 10 feet.
Receptionist: So he can walk 10 feet.
Me: No.
Receptionist: Let me check the schedule for you.
Pause
Receptionist: The earliest available appointment is Feb. 15.
Me: But today is Dec. 9.
Receptionist: Yes. The earliest available appointment is Feb. 15.
Me: But today is Dec. 9.
Receptionist: Yes. The earliest available appointment is Feb. 15.
Me: Anything earlier? It's kind of an emergency.
Receptionist: The earliest available appointment is Feb. 15.
Me: It's an emergency.
Receptionist: Then you should take him to the emergency room.
Me: I don't want to go to the emergency room and sit for 37 hours.
Receptionist: Then you are refusing my advice?
Me: Well, I just don't think the ER is the right place for him.
Receptionist: Then you are refusing my advice?
Me: Um, well, yes, I guess I am.
Receptionist: Well, then, I am required by law to tell you that in refusing my advice you may be putting the patient's life in danger and that this could result in harm or death to the patient. Do you understand that?
Me: No.
Receptionist: What part of that don't you understand?
Me: The part where it's my fault.
Receptionist: Refusing my advcie may be putting the patient's life in danger and could result in harm or death. Do you understand that?
Me: I understand that he needs to be seen by a cardiologist and that one is not available until Feb. 15, so I'm not sure that refusing your advice actually does that.
Receptionist: Refusing my advice may be putting the patient's life in danger and could result in harm or death. Do you understand that?
Me: Yes, I do.
Receptionist: Is there anything else we can help you with?
Me: Please, no.
Receptionist: Is that a yes?
Me: No.
Receptionist: So that's a no?
Me: Yes, thank you.
Receptionist: So that's a yes?
Me: No, that's a no.
Receptionist: Thank you for calling the World's Lamest Medical Center. Have a nice day.
 
 

Tuesday, October 12, 2010

Tre(s) jolie: Can you spell Ethic$$$?

“Sir, just let me take your vitals.”

The nurse—we’ll call her Priscilla—fiddled with the computer as she strapped the blood pressure cuff to Carl’s arm. She reset the computer once, twice, a third time, mumbling under her breath about how the unit wasn’t working right. Nobody else had difficulty with it in the 10 days he’d been in that room, so I instantly suspected that Prissy might be a problem. Just my wonderful grasp of the obvious kicking in again.

P woman finally got the BP and his oxygenation but forgot about his temperature. Perhaps it wasn’t a problem, even if he was being treated with large doses of antibiotics for pneumonia.

I felt slightly uneasy when I left for the night, but I felt slightly uneasy every night when I left the hospital. There was always something that seemed to go awry: blood sugars that dropped, inexplicably, into the 30s in the middle of the night (maybe they should have held off on the insulin?), breakfast trays that arrived with foods high in potassium (his potassium was so high after surgery he was moved into ICU because they feared a heart attack), test results that had been lost in the system for seven months and indicated a serious problem.

When I left, Prissy gave me her best condicloying smile (my word for condescending and cloying) because now she had the customer, er, patient to herself.

When I returned the next morning, Carl handed me an envelope on which a website had been scrawled.

It seems that in administering his medications, Prissy remarked to him about how many he took. He said he, indeed, took several meds but that he, indeed, had several medical conditions for which they were warranted.

She smiled brightly and told him if only he would try Tre, he probably wouldn’t need all those medications.

Tre, she told him, was a “biotactive nutritional essence” from GNLD. “It’s not just pomegranate juice,” she told him. It has lots of anti-oxidants and, of course, all GNLD products are “based in
nature, backed by science.”

Carl, who plays a lot of poker and has an excellent sucker detector, asked where one might get such a product.

What luck. It turned out Prissy was a GNLD distributor.

Surely, he would like some Tre, only $54.95 a bottle. He could afford it, she was certain, because he lived in those million dollar homes in the hills. (He doesn’t; he lives in a two-bedroom bungalow that could double as a bomb shelter, which I know to be true since I live here too.) So she wrote down her website.

Carl didn’t buy any Tre. And I don’t know if Prissy made her goals or got the $3,000 bonus or won that fabulous vacation to an exotic locale.

But I do know that, having seen the health care system up close, first with my parents and now with him, that I have run into a few scoundrels, including the nurse practitioner who cared for my mom and whose licensed was finally yanked for falsifying records.

I thought that was outrageous. But that was before I met Prissy.

Sunday, October 3, 2010

This blog unintentionally left blank

The last two months have been taken up with caring for Carl, who has been in and out of the hospital three times.

It sounds ridiculous to say my time has been limited; I have 168 hours in a week just like anyone else. But we have spent hours and sometimes days waiting for care, a hurry-up-and-wait hamster wheel that left our heads spinning. Our time is their time and their time is whatever time they choose it to be. Here’s a little look by the numbers:
***********
18
Number of hours in emergency waiting for a bed (the first time) after admission decision
***********
37
Number of hours in emergency waiting for a bed (the second time) after admission decision
***********
4
Number of days waiting for an MRI while he was in the hospital
***********
2
Number of days waiting to reschedule same MRI because they could find no record of doctor’s orders to medicate the patient
***********
90
Number of minutes late they were in taking him for his second MRI appointment
***********
30
Nmmber of minutes the MRI actually took
*******
120
Number of minutes until he was back in his room
*********
3
Number of times the car had to be valet parked because there was not enough parking
***********
1
Number of times the valet went home without giving me back my keys (this happened to be the night of the MRI when he wasn't returned to his room until 12:15 a.m.
***********
1
Number of times I broke into the valet stand and took my keys
***********
90
Number of minutes wandering the parking garage looking for my car after I stole my own keys back
***********
3
Time in the a.m. I got home after wandering around looking for my car
***********
6
Number of items on his breakfast tray the first three mornings of his separate hospitalizations
***********
6
Number of items on his breakfast tray the first three mornings of his separate hospitalizations that are banned from his diet by dietitians who had been working with us before the hospitalizations
(white-flour bagel, juice, eggs, cream cheese, milk, banana)
***********
3
Number of times I complained about this
***********
0
Effect it had
***********
No total available
Number of times I wondered if health care reform could fix a system so broken that he emerged not as the Empowered Patient but as the Embattled Patient.

Thursday, June 17, 2010

Oh, Lakers: I Love the Night Life

Five minutes remain in the seventh game of the Lakers-Celtics matchup, and I do the only logical thing I can: I snap the leash on Blue's collar and leave the house. The Lakers are down by 4 points.

"Honey, don't you want to watch the rest of the game?" Carl asks, mostly out of politeness. He's so engrossed in the game he wouldn't know if Godzilla were sitting across from him.

I don't want to watch. I don't need to. I can know exactly what's going on and still walk the dog just by listening to the air. In our weird, scruffy neighborhood, some Middle Easterners, some Latinos, some Asians, some gay, some straight, at least one cancer survivor and another person who talks to himself about the shortcomings of the rest of the neighbrhood, everybody is glued to the TV. None of us makes enough to be at Staples Center, but what we lack in income, we make up for in decibels.

"Defense! Defense! DEEEEFENSE" a little boy's voice screams as we turn onto Green Street.

He's so intense I'm sure he's shredded his tonsils, which, I am equally certain, soon will be squirting out his nose.

There's a low rumble of discontent. "Oh COME ON!" a man yells in accented English. "What are you DO-ing?"

Screwing up, apparently.

By the time I turn on to Oak Ridge five minutes later, the timbre has changed. One house on the north side of the street--a modest ranch--is practically rocking off its foundation. Young women's high-pitched shrieks blend with masculine woo-hoos which sets off a round of basso profundo barking from what has to be a Shetland pony-sized dog down the street.

I can tell the Lakers are winning as I turn onto Reynolds. Lots of clapping and hooting.

A cop car is parked at the corner, but I don't see the cop. I wonder if it's pre-emptive; earlier in the day, a friend, an LAPD detective, is on his way to Staples Center to deal with the "knuckleheads" (his word) who will be celebrating later.

We are about a block from home when I hear the first two firecrackers. At least, that's what I am pretending they are. And then more popping. It reminds me of the first New Year's Eve I spent in California: I cowered under a bean bag chair as my neighbors fired their weapons in the air.

We scurry for home, knowing that what goes up will come down. I just hope it's not in my head.

As I open the door, my cell phone twangs with a news alert: The Lakers have won their 16th NBA title.

I knew that.

Friday, May 28, 2010

Breaking stuff is hard to do: a lesson in letting go

I was annoyed when Ann broke my ceramic pie plate, none too pleased when she shattered my clay pot from Africa. I was really huffy when she broke the delicate Nativity scene and livid when she broke the handle on my Three Little Kittens coffee cup.

None of the first three items could be repaired, but the coffee cup was a clean break so I used a Superglue-like bonding agent to knit the handle back to the mug. I let it cure for a week. It felt solid.

It lasted approximately four sips and came off in my hand, drenching me, the table, the upholstered chair and my laptop with hot coffee.

And finally, I got the message: It was time to let go.

Ann was my friend for nearly 30 years. We started as work colleagues; I was her editor and she was a reporter, and it was all laughable because she was 12 years my senior and I was a newbie. A girl couldn’t have had a kinder or better mentor. And, as time went by, a kinder of better friend.

In the important matters of life, we had nothing in common. She had a wonderful husband and two darling boys. I had a few rotten-ass boyfriends and two cats. She was as gentle as a spring rain and had an easy laugh. I was earthier and practically brayed with hysteria at my own jokes.

Who knows why people become friends? I know only that we did. It was one of those rare-for-me instances when I knew how blessed I was in real time.

When my mom was diagnosed with cancer, Ann appeared, unbidden, at my doorstep and comforted me. When Ann was diagnosed with cancer, I appeared at her doorstep, also unbidden, and, I hope, comforted her. I had planned to be somewhere else, but there was nowhere else I wanted to be more. I wanted to show her my engagement ring from Carl, whom she and husband Lyle had met and of whom they approved. When we said goodbye, she promised me she would call me on my wedding day, seven months hence.

It was the only promise she ever broke.

For the next six months, we talked occasionally, and I wrote letters. I sent her a teddy bear she had once sent me “to hug when other huggees are absent” and told her he was a stand-in until I could get there again and spend a week taking her to chemo, which was formulated to thwart the very aggressive cancer.

Then her son called to tell me that her system had shut down unexpectedly. The chemo was too harsh for such a gentle soul. I wept until I was exhausted, gathered myself, got on a plane and went to the memorial service. I comforted friends and hugged family and never shed a tear. I would celebrate her life, dammit, dammit, dammit.

When I got home, things began to break. That ceramic pie plate? She gave that to me. I found it shattered on the wood floor. The clay pot? Also from her. It fell over while I was dusting. Smashed. The Nativity scene? A Christmas gift from Ann some years ago. It fell out of a box of Christmas decorations and hit the concrete floor in my storage unit. Nothing else broke but that.

I had just mentioned the coffee mug to Carl a few days earlier and told him she had bought it for me for my birthday almost 20 years ago. Not more than a week later, my kitten jumped on the dining room table but didn’t quite make it, pulling the place mat and the cup to the floor, where the handle snapped off.

I glued it on. It came off.

I was furious.

But at whom? At the kitten for being… a kitten? At Carl for not catching the cup? At God for being a selfish hog who took my friend home too soon?

Yes, illogically, at all of those things. Being angry was easier than confessing that I sometimes wept secret, bitter tears that ambushed me at odd moments. It was easier than admitting that the things that had shattered were messages that my anger would only break my own heart over and over again. It was easier to be angry than it was to let go.

It was as though Letting Go 101 was a class, and I kept getting an F. I kept taking the makeup test and getting an F. Summer school? F. Remedial Letting Go? Big fat F.

I hope to do better on the next test. Signs suggest the student is improving. After making a purchase the other day at the OC swap meet, a vendor chased me down as I walked up the aisle. "This is for you. I thought you might like this," he said as he handed me, unbidden, a new coffee mug.